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Craniosynostosis Support Group
craniochat.com is a support group for anyone that has had Craniosynostosis (CS) touch their lives. You can ask questions, find out useful information and meet people in a similar situation. We seek to offer support, information and recent research to people with Craniosynostosis and related syndromes. You don't have to be alone, despite Craniosynostosis being listed on the National Organization of Rare Disorders database. We offer services to those concerned about the shape of their children's head, those who have recently been diagnosed with Craniosynostosis and anyone who has already been through the surgery. The resources on our site have been designed to ease some of the concerns you might have.
Our aim is to help
We want to provide parents with the best, most up-to-date information on Craniosynostosis and all available treatment options. It is important to raise awareness in parent's and the medical communitiy about the distinction from positional flattening because this is becoming increasingly common with the anti-SIDS campaign. Connecting parents to the services that they may require, including help with costs, mental health concerns including depression, genetic counseling and dealing with other health issues. People effected by CS must realize that they don't have to be alone.
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